I had a very emotional day at work last week. I saw what my life could have been like if Benjamin had lived. We were told about a bunch of "white" spots in his brain representing severe brain damage, so if he survived, he would be extremely disabled. My response the the doctor when he told me this was,"I will change his diapers until he is 100 years old!" I knew I could handle it, I had worked with disabled people of all ages my entire life. I have always wanted to live like them in a sense! They don't worry about all the hoopla in the world, they brighten up lives and remind us to appreciate what we have more often. I was definitely up for the challenge. I imagine I would have had to stop working to take care of him full-time, I would work with him as much as I could to bring him to the highest point he could reach, I would be proud of him everyday of my life.
Like I said before, last week a wonderful family came in with a teenage son that had severe developmental delays. I was working on his admission, when this child that is old enough to be driving, needed his diaper changed. I went to close the door so people passing in the hall could not see in, and after my five steps to the door, I turned to find that the parents had already changed his diaper. They were an awesome team. They were happy, they were patient, they were in love, and they were up for this challenge. I wondered if Paul and I would have survived a child like this and if we could handle it with such grace. You see, in my profession, I work with lots of disabled children and I have noticed how many are from divorced homes. This puts a strain on a marriage, but I have witnessed the strength of a marriage that survives the first few years of dealing with a child that needs more from you than you even think you have in you. I admire this family. They are stronger as a unit, this is evident. I would love to give them a weekend away to enjoy one another as a couple. This couple were Christians and we talked about our faith. They were giving God the glory for their marriage and they were so grateful for their son. I started getting sad when I thought about how many people make the decision to abort their baby if they find out anything is "wrong" with it. I would still want my baby, even if he had a diagnosis that made him be dependent upon me for the rest of his life. I would consider this an honor.
Another family that comes to mind for me is the Suffron's that go to our church. This couple has become united in caring for George, and their son is doing things that doctors told them he would never do. Just goes to show you that no doctor can stop our God. I saw their son George walking today and my heart filled with joy, this is just one more milestone that they have reached. He is a miracle and he keeps showing those around him God's strength. I admire this couple and family. Amy makes mothering George look easy and she never complains. She even finds the time to come to nearly all of my fundraisers and all of the committee meetings for the fundraising planning. She has blessed my life in more ways than one.