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Sunday, April 1, 2012

Five Blissful Weeks

    Can you believe it has been 5 weeks since I received my liver? I can honestly say that I am full of energy, I never realized how tired I felt all the time before my transplant. I used to fall asleep all the time watching television with a load of laundry running, dishes that needed to be washed, and lunches that needed to be made. I am now staying up late just because I CAN! I still love to wake-up early because it is so great to have another day to enjoy this wonderful life. I love every minute of my days with Thomas. I love getting him dressed, cooking for him, shopping with him, HOLDING him, and loving all over him. I am having to wear gloves around him for eight weeks and a mask for two weeks anytime my face is close to his face because he got his 18 month shots this past Friday. Anytime he gets live vaccines, I have to do this. While I love touching him skin to skin, this is a small sacrifice, nothing in comparison to the sacrifice made for me.
     On this topic of my donor, I hope and pray that his family wants to meet me If they don't, then they at least have to write me back. I want to know my donor's name. I want to be able to say it, to honor his name, to keep his name on the lips of others, I want his name to be known to tons of people. I would love to set-up a scholarship or something like that in his name. Please pray that his family wants to meet me. It is very important to me. I have started the letter to his family a few times, but I get all choked-up every time. When I exercise, I have the best thoughts for my letter, so I decided that tomorrow while I walk, I will record my thoughts out loud and then maybe that will help me write the letter. I think my problem is that no words seem to express just how grateful I truly am.
     I have lost a total of 27 pounds since the DOT (Date of Transplant), this is the new lingo they use at my doctor's appt, instead of DOB, we use this new date! I graduated from my weekly dr appts to every two weeks now. I only had to do labs once in between my appts. I go back to the doctor this Thursday, April 5th, and hopefully he will release me to exercise a little harder, travel a little farther, and hopefully, we will continue to go down on my doses of medication. The lower the dose, the less immunocompromised I am. I will forever be immuno-compromised as long as I have this new liver. A few things I can't do anymore is: eat at buffets, eat at potlucks, be in really crowded areas, work in the church nursery, work in the yard (darn), and a few other activities! I am trying not to be a psycho germaphobe, but I want to take the best care of this liver that I possibly can. My life expectancy is now normal, meaning that I am expected to live as long as anyone else my age, gender, etc..  That fills my heart with joy!
     I made a video with my aunts updating how I look and some info that everyone probably wants to hear including pictures of my incision! We will be uploading it to YouTube soon and I will post the link for all of you to enjoy!
     I have been able to share my testimony with several different people at restaurants, shopping, church, or just out and about. I can't seem to hide my enthusiasm and excitement here lately. I get overwhelmed sometimes with joy. I used to pray without always expecting results, sometimes I think we all do that, we pray and forget to ever look for an answer. Well, remember me the next time you need an example of an answered prayer. God is still in the business of performing miracles and answering prayers! I can't say thanks enough for all of the prayers sent up for me. My favorite place to be lately is church or worshiping. I catch myself raising my hands up as I exercise at the track listening to my praise music and I often start singing out loud. I have stopped caring so much about what others think of me, I have one person that I want to please and honor and that is Jesus Christ! 
     I love to check the mail lately because I usually get a sweet card in the mail and it makes my heart smile. I have been surprised by how many people have gone out of their way to be kind to me and my family. I feel like this whole thing has actually been a blessing to me. I have found out who truly loves and cares for me, I have found out who my true friends are, I have realized what is important in life, and I learned how to prioritize things much easier. I am just so happy to be here, I mean, heaven sounds great and all, but looking at Thomas feels pretty close to heaven! I was thinking about how becoming a parent really makes you stop and think about spiritual things. I often think of Mary and how she had to nurse Jesus, teach him to walk, talk, become independent, let him grow-up, and most of all how she had to watch her son die on the cross. I just don't know how she did it. God knew she was strong enough for all of this. I wish the Bible had more details sometimes about the little things, but I guess it would be way too long. I look at Thomas and think about the miracle he is and how God made him so perfect. Love has taken on a whole new meaning to me when I think in terms of Thomas. He is the person I would do absolutely anything for!
     I am currently looking for recipes that taste good and are low-salt, and good for a diabetic (low carb and must have protein). I know, with that description, good-tasting doesn't seem to come to mind, but I need some new ideas! If you have any, please send them my way.
    I am getting so excited for Easter Sunday! I am so glad that Jesus died for me and rose again! I made Thomas some shirts for his Easter Egg Hunt at our church and for his school party. I am still very new to this whole sewing thing, but each time, I get a little better. I know I need to do a better job of blogging, but to be honest, I have been super busy living life to the fullest. Let me know if you have any questions, I am not shy, so just ask.

1 comment:

  1. Your blogs stil bring tears to my eyes. They have never been in a "I'm sorry for her" kind of way either. They have been a type of "I am so inspired by her testimony" type of tears. You are a walking miracle/testimony/I could go on... I catch myself raising my hands and singing at any given moment while I am listening to praise and worship songs too! I'm not sure everyone understands exactly what music does for the soul but it is like an extra dose of water to our clay (which makes us all that much more moldable) :) Thank you for sharing your heart. Please don't ever stop! Talking to you in person would probably bring a whole new type of tears into the picture... but because I am umpteenthousand miles away, I love to read your posts instead! JB

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